Sounds stupid but I joined a support group with pts who have had CRVO. Many of them were surprisingly young with perfectly normal health (negative test results). I read a lot of the posts and was kind of depressed. None of them resolved and were talking about getting their usual anti-VEGF injections...
10% non-ischemic CRVO resolves
15% non-ischemic CRVO become ischemic
I really want to have a good cry but am so afraid that it will swell up my veins and make things worse. I'm pretty sure the dull ache I am feeling is the swelling of my veins. I know my VF is decreased because it's so bothersome I can't see as clearly and brightly as my right eye.
I know I'm not dying but I feel like doing absolutely nothing. Sulking is bad, but it really sucks especially when you are in the profession and you KNOW that all you can do is wait. You KNOW there is no treatment and nothing that can be done. You KNOW all the mechanisms and you can't help it at all. What good is knowing all this?
Waiting is trying my character. All I can do is turn to God and pray that it won't get worse.
what was once tightly tucked inside the cranium... all drawings and writing belong to me. copyright 2019
Saturday, June 14, 2014
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